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Ehlers-Danlos syndrome - Care at Mayo Clinic - Mayo Clinic

Ehlers-Danlos syndrome care at Mayo Clinic Your Mayo Clinic care team. Ehlers-Danlos syndrome affects many different body systems, so it's important to have different specialists involved in your care. At Mayo Clinic, your team may include specialists in medic

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This guide cannot diagnose a condition or recommend a personal treatment plan. Discuss medical questions with a qualified professional.

Ehlers-Danlos syndrome care at Mayo Clinic

  • Your Mayo Clinic care team. Ehlers-Danlos syndrome affects many different body systems, so it's important to have different specialists involved in your care. At Mayo Clinic, your team may include specialists in medical genetics and physical medicine and rehabilitation — as well as vascular, cardiovascular, neurological, orthopedic and pediatric surgeons, as needed.
  • Advanced diagnosis and treatment. There are many different types of Ehlers-Danlos syndrome and the symptoms can overlap. Mayo Clinic physicians have extensive expertise in the condition, so they can quickly determine a precise diagnosis and treatment plan.
  • Long-term management. The goal at Mayo Clinic is to propose a long-term management plan that can be followed by your local primary care physician.

Expertise and rankings

Because Ehlers-Danlos syndrome is a rare condition, it may be difficult to find a doctor with experience diagnosing and treating it. Mayo Clinic doctors care for more than 1,000 adults and children with Ehlers-Danlos syndrome each year. Mayo Clinic in Rochester, Minnesota, Mayo Clinic in Phoenix/Scottsdale, Arizona, and Mayo Clinic in Jacksonville, Florida, are ranked among the Best Hospitals for orthopedics by U.S. News & World Report. Mayo Clinic in Rochester, Minn., has been recognized as one of the top rehabilitation hospitals by U.S. News & World Report.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states. For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people. In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need. Learn more about appointments at Mayo Clinic . Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

Ehlers-Danlos syndrome

  • Symptoms & causes
  • Diagnosis & treatment
  • Doctors & departments
  • Care at Mayo Clinic
  • Diseases & Conditions
  • Ehlers-Danlos syndrome

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Related questions

01What to expect

At your first visit to the Ehlers-Danlos Syndrome (EDS) Clinic in Florida, you receive a complete diagnostic evaluation for EDS. This includes a review of your medical history and a physical exam. Your healthcare professional may: Examine your skin and joints. Listen to your heart and lungs. Check your blood pressure, heart rate and breathing. If you have not had genetic testing , your team may recommend it based on your evaluation. At your second visit, your healthcare professional reviews your care plan, answers your questions and explains next steps. After your second visit, your care usually returns to your local healthcare professional. The EDS Clinic works closely with your local primary care professional and specialists to coordinate your ongoing care. Some people may return to Mayo Clinic if their condition changes or they need additional specialty care.

Source: www.mayoclinic.org ↗
02When to see a doctor

If you or your child has very flexible joints along with skin or healing issues, frequent joint dislocations, unexplained bruising or unusual scars, or a family history of Ehlers-Danlos syndrome, talk with your healthcare professional about your concerns. Also talk with your healthcare professional if you're planning a pregnancy and have a family history of vascular EDS or other connective tissue disease. People with EDS should get medical help right away if they experience: Sudden pain or bleeding that they can't explain. Chest pain. Trouble breathing. Sudden dizziness or fainting when standing. Sudden changes in vision, such as flashes of light or dark spots.

Source: www.mayoclinic.org ↗
03What you can do

Before your appointment, it can help to write down: What symptoms you've been having and when they started. Whether any blood relatives, such as parents, grandparents or siblings, have had similar symptoms. If any blood relatives have died from a blood vessel or organ rupture. All medicines and supplements you take regularly.

Source: www.mayoclinic.org ↗
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Peptide Therapy Guide Editorial Team

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